06 July 2009

Tami + Jeremy : Part 2

As promised, here are some reception photos from this incredible event.

Tami's gown : Jenny Packham
The head piece : Maria Elena
Flowers: Bart Krogman from The Daisy Basket in Columbus, Ohio.
Venue: Franklin Park Conservatory
Photography: Red Gallery Photography
Calligraphy: Debi Zeinert from The Blooming Quill
Stationery: The White Aisle

02 July 2009

Tami + Jeremy : Part 1

I know you guys are going to LOVE this wedding as much as I do. It's got so much of that vintage charm we all dream of. Wait until you see the bride's headband! We were lucky enough to work with the bride and the mother of the bride on their reception stationery and were beaming when we saw the results. Take a look at the pre-ceremony and ceremony photos:



Tami's gown : Jenny Packham
The head piece : Maria Elena
Flowers: Bart Krogman from The Daisy Basket in Columbus, Ohio.
Ceremonial Consultant: Bobbie Izeman
Venue: Franklin Park Conservatory
Photography: Red Gallery Photography
Part 2 with all of the reception pics to follow tomorrow...

Screw It, We're Going...

After a couple of calls to our team of doctor's in Boston yesterday, the trip is back on... We figure the benefit of having something to look forward to outweighs the potential delay of a couple of weeks in starting another course of treatment. Feel like having a great 80's flashback? How many times do you think I can play this song today?


01 July 2009

The Results Are In ... sort of

The good news is that there is no bad news. The bad news is that things are still a little up in the air. First, the really, really good stuff. These new scans confirmed that the node that was in my lungs is gone. The tumor behind my kidney, the one behind my liver and the one in my breast have all decreased in size "significantly." This means that all of the disease that we really thought was most threatening is reacting and shrinking.

Now for the confusing bit. I still have little nodes hanging out right underneath of my skin. A couple seem to be getting a little smaller, some are stable and a couple may be getting slightly larger. Usually these are the first nodes to react to treatment, and then the interior disease follows. I see to be working in reverse which is par for the course in my experience with melanoma. Nothing has followed any of the normal "rules."

So.... the verdict is, they aren't ready to stick me in for round 2 of treatment just yet. They want me to wait another 8 weeks, have more scans, and make a decision on what to do then. They'd really like to see everything reacting and shrinking by that time.

Overall, we're extremely happy. I know from a rational standpoint that this is really great news which I should be jumping for joy over (and have.) From an emotional standpoint, I've got some mixed feelings which I'm sure will pass given a little time. Living scan to scan is no way to live and we just added 2 more months to the timeline. I had hoped to start round 2 of treatment next week, have time to recover and then look forward to a vacation this Fall. It's just not happening. Yes, I realize that Africa will always be there, but it is difficult when you are in a situation like this to think of "next year." We've learned to live day to day, not year to year. Again, I know the emotion will pass in a couple of days. For today, I'm just letting things sink in, and appreciating all of the wonderful news that came out of this. Thanks again for all of the support out there.

P.S. I have a gorgeous wedding to share with you all tomorrow.... No more of the medical posts for awhile.

29 June 2009

Finger's Crossed ....

So, tomorrow is THE day. It's been 8 weeks since I finished my two week course of IL-2 and tomorrow we find out if it's working. Have I mentioned that I can actually feel most of the tumors in my body? Mmm hmmm. Think of sitting at your desk, having an itch, not really thinking about it and scratching it but woops .... there's that pesky cancer. They're like little kidney beans just hanging out. It's a blessing and a curse. It seems that the melanoma nodes keep moving and shifting closer to my skin, which is great because it would make them fairly simple to remove and it makes me think that my body is trying to push this out of my system somehow. Of course it also makes me slowly lose my mind. I spent a sizable amount of time this morning feeling myself up and going back and forth ... "I think it really does seem much smaller than it was 4 weeks ago." "Wait, maybe it's just shifted position and now I can't feel the whole thing." This goes on for a few minutes and then I realize I'm driving myself completely, certifiably nuts. In 24 hours we'll know, and until then no matter how much groping I do I just won't be able to figure it all out.

So.... we're hoping for "shrinkage" or at least stability again. Let's be honest, I'm looking for results! I'm hoping that they tell me it's clear that the IL-2 is working, and I sign up to start another round next week. I can't tell you how badly I want to do it all over again! I've never looked forward to feeling like crap so much in my life. So tomorrow, keep your fingers crossed for us. Say a prayer to whichever God you pray to. I don't turn down any kind of faith. I had a friend bribe a priest in Brazil apparently on my behalf a few years ago when she found out I'd been diagnosed. They had a quick ceremony, lit some candles, some money passed hands and she told me I'd be fine ... that we should just samba. All positive thoughts are welcome! Hopefully my next update will have dates that we'll be closed so that we can finally kick the crap out of this once and for all and move on.

Oh... here's my favorite new t-shirt:

25 June 2009

Inspired by "The Butt Dance"


Anyone else out there addicted to "So You Think You Can Dance?" I've never missed an episode. I danced when I was younger, and will literally watch anything (no matter how bad or cliche the plot is) that involves great choreography. This week I found myself hitting rewind on the Tivo for yet another Mia Michaels routine .... the "butt dance." Yes, she used the butt as inspiration. It wasn't really the butt that got me inspired, it was the music and costuming. I love that vintage, 1940's lingerie, French kind of charm. This lead me to a inspiration board:

1st row: Bleu garters, vintage French mirror, Elie Saab dress, image from The Paris Apartment
2nd row: Reem Acra gown, vintage Vogue pattern, Vogue images
3rd row: Vogue, The Paris Apartment


... and this lead me to a new invite design
which I'd love to mail out with a thin lace beaded ribbon wrapped around it...





Planning For Africa

So I finally did it... we pulled the trigger this morning and have booked our trip to Africa this Fall. Late-September cannot come soon enough! We haven't taken a vacation in a couple of years, and after all of the medical drama this is truly needed. For anyone thinking of going to Africa for their honeymoon, I have a few planning secrets to share!

Our trip is going to be 4 full weeks (Sept. 20-Oct. 17) which also just so happens to coincide with our slow time of year. I wanted to start in Cape Town as it's an easy city to get to, and from everything I've read, it's a great way to ease yourself into Africa. We'll be flying via Amsterdam or Dubai depending on pricing (I'm trying to finagle a business class flight for the longest leg on Emirates Airline.) I've been using http://www.kayak.com/ to compare rates over the last couple of months. They're a great resource, and you can then book your flights directly with the airlines. From Boston, the trip should take about 20 hours. Not too bad ... our last trip to Asia wound up taking 43 hours each way. I just keep reminding myself of that.

I started mapping out the route we're going to take about 4 months ago (6+ months before the trip.) Safaris book up early at the best camps even in a slow economy, and there are many people who book more than a year in advance. I decided the best route for us would be:

Cape Town, South Africa
Franschhoek, South Africa (wine country)
Kruger National Park, South Africa (safari)
Livingstone, Zambia (Victoria Falls)
Day trip to the Zimbabwe side of the Falls
Johannesburg, South Africa (transiting for one night)
Nairobi, Kenya
Masai Mara, Kenya (to see the great migration)
Zanzibar, Tanzania

This route allows us to fly directly back home from Zanzibar rather than having to head back to Cape Town first. It also limits the amount of days we'll spend traveling from place to place, and it allowed us to wind up at Victoria Falls for the full moon. You're supposed to be able to see a lunar rainbow at night.

The other reason for the route is that it allowed us to take advantage of package deals. How do you find the deals? I subscribe to Travel and Leisure and Conde Naste Traveler. I started by sitting down one day and tearing out every single article I could find on South or Eastern Africa, as well as every "top 100" or "top 50" list for the last couple of years. I wrote down the hotels, resorts and tour companies that made multiple appearances. Never assume that just because a property is in one of those magazines that it's out of your budget. For instance, I found that the Westin Hotel in Cape Town is on multiple top 10 lists, but is $144 a night for a deluxe room. Le Grande Roche (right outside of Cape Town) is ranked the 2nd best hotel in the world! It's $245 a night. Not bad!

I got online in search of luxury safari companies running sales. http://www.luxurylink.com/ gave me a lot of clues. If you hit their site (they also have travel packages and info for other regions of the world,) you'll see which hotels and companies are offering specials. My thought was, you don't offer up packages for auction on a website unless you're a little flexible on price! That's how I decided our best bet was a company called AndBeyond.

A little time spent searching http://www.andbeyond.com/ surfaced all kinds of discount offers, but the key is the time of year. For instance, they are running a Stay for 3 nights / pay for 2 nights special in their South African lodges, but the special ends Oct. 1. I planned the trip so that we would be checking into their Ngala Lodge Sept 29 and out Oct 2 so that we would qualify. I can't imagine the game viewing is that much better Oct 1st than it is Sept 30th. We also signed on for a package in Masai Mara, Kenya at Kichwa Tembo where they were able to throw in free flights to and from the safari camp, and they were able to give us off season rates on 2 nights at their higher-end camp because they did not have availability at the camp we'd originally requested. These little discounts added up to saving us thousands of dollars in the end. Safaris are all priced per person, so costs rise very, very fast. However, we did say when we decided to do this that it's probably a once in a lifetime opportunity and a place to splurge. Doesn't everyone want to have the Out of Africa experience at some point in life.

The other place we saved money was in all the little extras. By using the forums of Trip Advisor and Lonely Planet's Thorn Tree I was able to find the best way to rent cars, book airport transfers, and find low cost airlines that the sites like Expedia don't search for our shorter flights between countries. I was also able to find little gems like where to book a Malay cooking class in Cape Town, or where to book a "Jazz Safari" where you go to the townships at night, have dinner at a local musicians home and then go out on the town to dance till 2AM. Those are the experiences I can't wait to have! I'm in search of the local medicine man!

Where are you going on your next trip? Any suggestions for finding deals? Any South African or Kenyan brides out there with "must do" ideas for us? We're game for anything!